I know you’ve been worried about this so let me share the good news:
I have gotten the flare of the ass disease under control.
Let me also share how I accomplished this as it was a monumental task and could provide important information for my fellow diseased friends.
I will start at the beginning.
1. I wait three days to verify that I am, indeed, violently ill. I break into my emergency store of Prednisone.
2. I schedule the soonest available appointment with my GI doctor.
The soonest available appointment is two weeks later. (Note: Socialized healthcare has a couple drawbacks.)
So…
3. I go to the GP and am given additional steroids to hold me over until my GI appointment. However, my GP assures me that the Prednisone will pull me out of the flare and all will be well.
In the meantime, I eat like I’m on steroids.
Because I am.
(Note: I would definitely be a steroid addict if not for the unfortunate side effects.)
4. At my GI appointment, the doctor tells me to taper off the Prednisone, performs an uncomfortable physical exam and assures me all will be well.
5. I taper off the Prednisone and become progressively more and more sick. I make another GI appointment. In the intervening two weeks, I frantically search the internet for miracle cures, the symptoms of colon cancer, and the success rates for colectomies, while phoning the GI doctor’s office every few days for permission to resume the Prednisone.
My phone calls are ignored.
I find a purported miracle diet and begin carefully avoiding all dairy, caffeine, sugar and anything else that tastes good.
6. At my second GI visit, I exchange hundreds of dollars for a couple of tests which verify that GUESS WHAT? I AM IN THE MIDDLE OF AN ULCERATIVE COLITIS FLARE.
I also receive an apology for the ignored phone calls, four boxes of medicated enemas
and the advice to come back in a few weeks if things are not better.
7. I use the enemas for 11 days merely to prove their futility. I place the remaining three boxes in an abandoned room behind a set of drawers.
8. I call my GI doctor and leave a message informing him that I am still sick.
My phone call is not returned.
9. I despair and began eating every edible object that I am confronted with, including black coffee, chocolate bars, and a tub of ice cream.
I do not get better.
10. I perform further internet research, discover that an increased dosage of my current medication (Lialda) should stop the flare. I increase the dosage.
I am cured.
For now.
Lesson: NEVER get one of those weird diseases that no one knows anything about.
And never complain about the subject matter of my posts, jerk.
You know who you are.
I could write a novel about my colon. Try me.
——-
Week 25
We had our usual tea times…
and classes…
Hit three farmers’ markets..
Hung out at the Botanic Gardens…
Started looking for a new (to us) car…
Brunched at one of our favorite places…
and found a delicious Chinese restaurant.
Also this week Sebastian was officially introduced to solids.
We were all very excited.
Especially Sebastian.
Then the rash appeared.
Doctor appointment to be made tomorrow.
Sebastian has started some tumbling but still refuses to actually flip over.
He has made some efforts towards crawling… sort of..
And about five days ago, Sebastian began sitting up all on his own.
It is now his favorite position.
But he lacks complete stability.
Sebastian has also started to notice and interact with the dogs.
Daphne may be his current favorite to watch.
In addition, Sebastian is now willing to hold his pacifier without assistance.
But only while attempting to eat it.
And he learned a new yoga pose.
——
G.P.S.
—–
This is a song that appears on commercials for one of the popular grocery stores (New World) in New Zealand. It is pretty good.
This is a story about getting your kids to go to sleep, read by Samuel L. Jackson. If you are easily offended or, perhaps, at work, please do not push play. Also, don’t judge me for thinking it is hilarious.
God would be unhappy with you.